The 7 Stages of Dementia: How To Cope With The Disease

Living with Dementia in Australia

With Australia’s quickly-aging population, an increasing number of older adults are at risk of dementia. However, this is not a problem that’s exclusive to us, but a global phenomenon affecting countries around the world including America, Japan and Germany. 

What is dementia?

Dementia is a degenerative disease that affects one’s cognitive functions brought about by abnormal protein growth around the brain cells, damage to protein structures in the brain or lost connection between brain cells. 

While some people confuse dementia with Alzheimer’s, dementia is actually the general or umbrella term used to describe a group of symptoms that commonly include problems regarding memory, thinking, problem solving, perception and language. Alzheimer’s is a disease that falls under the category of dementia, among many others. 

Dementia in Australia

In 2021, dementia affects an estimated 472,000 people living in Australia. It is projected by Dementia Australia that the number will increase drastically, expecting to double to 1,076,000 people by 2058. Fortunately, the Australian government takes these statistics seriously and has various care programmes in place for persons with dementia all over the country. 

How is dementia diagnosed?

There is no single test to identify if someone has dementia. Instead, there are various medical assessments that are used by healthcare professionals. Dementia is also not diagnosed as one singular disease, but is usually classified into various types depending on the cause, and in stages depending on its severity. 

Cognitive and Neuropsychological Tests

Cognitive and neuropsychological tests are used to assess one’s memory, thinking and language skills, reasoning and judgement, as well as orientation. Neuropsychology looks at how your brain health affects your behaviour and thinking skills, and the overall relationship between brain and behaviour. 

These tests are most suitable for candidates who are already experiencing symptoms or have complaints with regards to their memory or cognitive functions. This may include a shift in a range of factors including concentration, reasoning, memory, perception, coordination, personality, and even language. 

Brain Scans

Apart from identifying changes in the brain’s function and structure, brain scans can also spot strokes and tumours, which are possible causes of dementia. Some of the most common scans include: 

• Computed tomography (CT) scans — A test that uses computers and rotating x-ray machines to create cross-sectional images of the brain and other parts of the body
• Positron emission tomography (PET) scans — An imaging test that uses radiation to produce images of your brain activity, which can help doctors assess how well your brain is functioning
• Magnetic resonance imaging (MRI) scans — A painless procedure that uses strong radio waves and magnetic fields to create detailed images of the brain and other body structures

Genetic Tests

While it is a rather uncommon cause, dementia can still be passed down through gene defects. In these cases, genetic tests will be conducted to help people find out if they are at risk for dementia. If you have any immediate family members who have dementia or had it previously, a genetic test may be recommended for you. 

Laboratory Tests

During a physical examination, lab tests may be conducted to look for signs of medical problems that can cause dementia. These tests include blood tests, thyroid hormone tests, and  lumbar punctures, which allow doctors to check the levels of various chemicals, vitamins, and hormones. This can help to rule out other causes of dementia-like symptoms. 

Other routine laboratory tests that may be conducted include: 

• Chemistry screens to check the kidney’s function and the level of electrolytes in the blood
• Glucose test to check the sugar level in the blood
• Toxicology screen to examine the blood, urine, and hair for drugs that could be causing problems
• Lead tests to identify heavy metals in the blood
• HIV testing to check for AIDS

Psychiatric Evaluation

This method is generally known to be used for diagnosing mental illness such as depression, schizophrenia, anxiety, bipolar disorder, and addiction. However, it can also be used to diagnose problems with memory, behaviours, and thought processes, which explains why it’s a tool used in diagnosing suspected persons with dementia as well. 

Once the evaluation is over, the health professional can identify whether any other mental health condition is contributing to your symptoms.

The 7 Stages of Dementia

While there are various scales to successfully measure the progression of dementia, the most common scale is the Global Deterioration Scale for Assessment of Primary Degenerative Dementia (GDS), which is also known as the Reisberg Scale. 

According to this scale, there are seven stages of dementia that can be further categorised into four levels: no dementia, early-stage dementia, mid-stage dementia, and late-stage dementia. 

Stages 1-3: No Dementia 

Stage 1: No cognitive decline

In Stage 1, there are no signs of dementia based on the doctor’s clinical interview. Individuals are mentally healthy and able to function normally. There are no symptoms or signs indicating behavioural problems, memory loss, or other factors associated with dementia. 

Stage 2: Very mild cognitive decline

At this stage, individuals may begin to experience mild forgetfulness, which is a normal sign of ageing among older adults. The most common symptoms in stage 2 includes forgetting where one has placed familiar objects and forgetting familiar names. 

These symptoms may not be evident to doctors and loved ones just yet, but caregivers may start to notice early signs of memory deficit. When in doubt, always display appropriate concern to the individual. 

Stage 3: Mild cognitive decline 

This is the last stage of this category where individuals will experience mild cognitive decline. In comparison to stage 2, the symptoms are slightly more severe and include a wider range of signs like mild difficulty in concentrating, decreased work performance, verbal repetition, getting lost more frequently, and having trouble finding the right words when communicating. 

The average duration of this stage ranges anywhere from two to seven years, and it is crucial for caregivers to identify the signs at this stage for diagnosis and early intervention.  

Stage 4: Early-Stage Dementia 

Stage 4: Moderate cognitive decline 

Early-stage dementia only has one stage and can be described as moderate cognitive decline. Unlike the first three stages of dementia where no evidence of memory deficit is detected in clinical interviews, signs of stage 4 dementia can be distinguished through various examinations. 

People in this stage will experience a range of cognitive issues such as: 

• Increased difficulty in concentrating on everyday tasks 
• Misplacing items often 
• Losing track of the date and time
• Having trouble remembering names of new people  
• Forgetting recent events and happenings
• Withdrawal from other people or activities  
• Exhibiting some forgetfulness on one’s personal history
• Unable to manage finances 
• Unable to travel to new places all alone 

The average duration for stage 4 is two years. 

Denial is a dominant defense mechanism for people with stage 4 dementia, which is why family members and caregivers need to be careful about how they tackle bringing up dementia in conversations. 

Stages 5-6: Mid-stage dementia

Mid-stage dementia comprises two main stages: stage 5 (moderately severe cognitive decline) and stage 6 (severe cognitive decline), also known as middle dementia. 

Stage 5: Moderately Severe Cognitive Decline

Lasting for a period of one and a half years, this stage is crucial as individuals can no longer function and perform the basic activities of daily living (ADL) without some level of assistance. 

In stage 5, the symptoms are easier to identify and are more apparent. In addition to the symptoms mentioned above, patients will also experience greater memory deficiencies such as frequent disorientation to time and the inability to recall important aspects in their lives like telephone numbers and addresses. 

Stage 6: Severe Cognitive Decline (Middle Dementia)

In stage 6 of dementia, an individual’s communication is severely affected and they can no longer carry out basic ADLs without help. In contrast to stage 5, the symptoms are much more drastic and include: 

• Forgetting both recent and past events in their lives
• Forgetting names of family members  
• Increased sleeping problems such as insomnia and frequent changes in sleeping pattern
• Increased unawareness of their surroundings including the year, the season, etc.  
• Difficulty counting down from ten 
• Loss of bladder control
• Increased irritability and aggression

Individuals with stage 6 dementia will also experience emotional and personality changes like delusional behaviour, anxiety, and obsessive symptoms, which can be harmful for the people around them if not treated immediately. On average, this stage typically lasts for two and a half years. 

Stage 7: Late-stage dementia 

Stage 7: Very Severe Cognitive Decline (Late Dementia)

Late-stage dementia includes just one stage, but is also the most crucial one out of all seven. Stage 7, also known as late dementia, is where all verbal abilities are lost and only unintelligible utterances are spoken. Other symptoms of late dementia include: 

• Difficulty evening and swallowing 
• Inability to walk 
• Urinary incontinence 
• Considerable weight gain or weight loss 
• Loss of motor skills 
• Gradual loss of speech 
• Restlessness and outbursts due to confusion 

In this stage that usually lasts from one and a half to two and a half years, caregivers need to focus on providing comfort and increasing the quality of life of the affected individual as most of their physical and cognitive abilities have diminished. 

Why is it useful to know the different stages of dementia? 

While the GDS is only one of many scales used to identify the dementia stages, this particular screening tool helps healthcare professionals and caregivers alike to determine the severity of an individual’s dementia and assess their future expectations based on their current cognitive status. 

Understanding the various signs and symptoms at every stage of dementia aids communication between doctors and caregivers and can help doctors determine the best course of treatment for each individual. This also helps them make a clearer diagnosis, benefitting both the affected individual and their family members.

Caregiving Through the Stages of Dementia

If you begin to notice any sudden changes in your elderly loved one’s behaviours or mannerisms, it may be time to seek professional help. Some families of dementia patients look into elderly day care centres or nursing homes that specialise in dementia care, where they focus on creating a nurturing environment where seniors can receive the necessary help they need and feel empowered despite their condition all at the same time. 

Alternatively, you can also seek treatment at home if you prefer a more private setting. It can sometimes be difficult to get a person with dementia to leave the comfort and familiarity of their home. Thankfully with Homage, you can receive dementia care support at home at every stage of dementia in just three simple steps. 

Once you schedule your free Care Consult with our Care Advisors, you will be able to share your loved one’s care needs and learn more about how our Care Professionals can assist you. Afterwards, we will then create a personalised Care Plan according to the recipient’s health status, needs, and preferences. When all is said and done, your loved one will be matched with a suitable caregiver and will receive care at your doorstep in no time.

If you or someone you know need support with caring for a loved one with dementia, we can help. Reach out to us at 0480 093 788.